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Even iets anders : Andere dingen

W126Club.nl

Alles over de Mercedes W126

Het is nu 29 maart 2024, 16:20

Even iets anders

Praten/kletsen over andere dingen in het leven

Moderator: Neerven

Even iets anders

Berichtdoor Bram Jansen » 20 nov 2015, 22:01

Op het http://www.mbklassiekerclub.nl/ dat onderdeel uitmaakt van onze Wclubs, hebben wij o.a een zeer gewaardeerde moderator.
Ook is deze moderator, Mark, zeer begaan met het lot van de medemens.

Met een hele club mensen gaat Mark zich in zetten voor een verschrikkelijke spierziekte Duchenne, en zoekt dus sponsors.
Hieronder de oproep van Mark, http://www.mbklassiekerclub.nl/topic20936.html

Heren en dames,

Volgend jaar september ga ik voor het goede doel Duchenne Heroes fietsen. Dit is een zware meerdaagse mountainbike tocht van 700 km in 7 dagen. Deze tocht ga ik zoals het er nu uitziet fietsen met een team van 8 man. (ieder fietst de 700 km)
Het opgehaalde sponsorgeld wordt besteed aan onderzoek naar de nu nog ongeneeslijke spierziekte Duchenne Spierdystrofie. Deze ziekte, die voornamelijk voorkomt bij jongens zorgt ervoor dat de spieren afgebroken worden.
Kinderen met Duchenne Spierdystrofie vallen vaak en kunnen niet goed rennen. Met ongeveer 10 jaar, wordt lopen erg moeilijk, en worden de kinderen afhankelijk van een rolstoel. En als de spieren die voor ademhalen nodig zijn te zwak worden, is beademing nodig. Ook de hartspier wordt steeds zwakker. Hierdoor is Duchenne Spierdystrofie uiteindelijk fataal.
Ons team is te volgen op: http://www.duchenneheroes.nl/wheelers4bram en binnenkort ook via de website http://www.wheelers4bram.nl Op deze website komt onder andere een stukje van Bram en zijn ouders, onze sponsor acties en ruimte voor onze sponsors.
Natuurlijk kun je ook een donatie doen voor mij of voor ons team op de website http://www.duchenneheroes.nl/wheelers4bram

Groet Mark
Bram Jansen
 


Re: Even iets anders

Berichtdoor Bertorelli » 22 nov 2015, 12:36

Prima actie :handgestures-thumbupleft:
Groetjes, Bert

'Mercedes-Benz Optimum aut nihil'
http://mercedes-w126.startpagina.nl
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Bertorelli
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